The experiences and challenges faced by adolescents who have a sibling with cerebral palsy
16TH EUROPEAN BOBATH TUTORS ASSOCIATION – EBTA CONGRESS ISTANBUL 2024 , İstanbul, Turkey, 19 - 21 September 2024, pp.13, (Summary Text)
- Publication Type: Conference Paper / Summary Text
- City: İstanbul
- Country: Turkey
- Page Numbers: pp.13
- Kütahya Health Sciences University Affiliated: Yes
Abstract
Purpose: Caring for individuals with significant disabilities, such as cerebral palsy (CP), comes with a substantial responsibility. While there are studies on how parents perceive this responsibility, there needs to be more literature on the experiences of healthy siblings, who are often overlooked within the family dynamic. This study explores the experiences and challenges of adolescents with a sibling with CP. Methods: Semi-structured interviews were conducted with 12 adolescents with a sibling with CP, aged 10 to 22 years. Results: Seven themes emerged from the interviews: (1) Emotional reactions; (2) Acceptance and resignation; (3) Sibling relationships; (4) Social relationships; (5) Expectations for the future; (6) Social participation; (7) Household responsibilities. Conclusions: The study revealed the experiences and challenges faced by teenagers who have a sibling with CP. These experiences can impact their future, family relationships, and social life. The study also emphasizes the critical role of healthcare professionals in providing personalized, person-centered care to effectively support this oftenoverlooked group within families affected by CP and make a significant difference in their lives. Keywords: Cerebral Palsy, Siblings, Lived Experience, Adolescents